Health

Ki jo vlaga G. A. A., državljanka Romunije 

Petition is addressed to
Petitionsausschuss des Europäischen Parlaments

3 signatures

Collection finished

3 signatures

Collection finished

  1. Launched 2019
  2. Collection finished
  3. Prepare submission
  4. Dialog with recipient
  5. Decision

Dies ist eine Online-Petition of the European Parliament.

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Petition is addressed to: Petitionsausschuss des Europäischen Parlaments

Vlagateljica peticije je 27-letnica, ki trpi zaradi spinalne mišične atrofije, redke in pogosto smrtne genetske bolezni, ki povzroča mišično oslabelost in postopno izgubo sposobnosti gibanja. Poudarja, da je edino zdravilo, ki bi ji lahko pomagalo pri zdravljenju hudega zdravstvenega stanja, ki mu je Evropska komisija leta 2012 podelila status zdravila sirote in je bilo leta 2017 odobreno v EU z imenom Spinraza, v Romuniji na voljo samo osebam, mlajšim od 18 let. Vlagateljica peticije meni, da to pomeni diskriminacijo na podlagi starosti in zahteva dostop do zdravljenja.

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Petition details

Petition started: 11/08/2019
Petition ends: 11/07/2020
Region: European Union
Topic: Health

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